WHEN Cameron Brock was born doctors told his mum to go home and enjoy what time she had with her baby son.
That was 14 years ago.
Since then his bones have broken and fractured hundreds of times.
He has not walked since he was seven, he is wheelchair bound and has not been to school since he was 11.
But on Saturday Cameron will be the guest of honour at a Star Wars extravaganza organised by Swindon's very own Luke Skywalker.
Cameron is only the fifth person in the world to have been diagnosed with Bruck Syndrome, a degenerative disease that attacks the muscles and bones.
It means he is confined to his Greenmeadow Avenue home with his mum for most of the time spending hours asleep because the pain he feels in his bones is too much to bear.
He has to take 35 pills every day, 13 before breakfast, and that doesn't include additional pain killers and antibiotics.
"Imagine the worse pain you have ever felt and think of me," he said.
"It gets worse as I get older and the doctors have told me that it's not going to get better.
"I can't explain what it feels like because it's a normal feeling to me."
Cameron's bones are very weak and break very easily.
At times he has had both arms and a leg all in plaster at the same time. And he is constantly in and out of hospital.
But Cameron and his mum, Serverine, 32, have a bond that stretches beyond that of most mother and son relationships.
They spend days and sometimes weeks inside their house unable to leave the front door because Cameron feels too ill.
"We are mother and son and the best of friends," said Cameron.
"I feel guilty because my mum is always here for me and looking after me.
"She can't just go off out shopping or out with her friends because she has to stay in with me and I do feel bad about that."
But Cameron cannot do what he wants either.
"I would love to just disappear for the weekend like other teenagers do," he said.
"It would be great to go off on the bus into town or to another place and come back when I want. But if I do feel okay and can go out my mum always has to take me."
And there are other things that Cameron, who is home tutored, misses out on too. "I miss going to school and seeing my friends.
"I would love to buy a sports car when I'm older and go off driving with my mates but I won't be able to."
However Cameron is grateful for what he does have.
"I have friends visit me and I like to watch TV and play on my computer games, which doesn't sound like much but it is to me," he said.
Serverine, who devotes her life to looking after her son, said they do not look too far into the future and take each day as it comes.
"I want the world for Cameron and I wish he could have it," she said.
"His condition is progressive but he has proved doctors wrong in the past and he will again."
Cameron is now hoping he will be well enough to attend the Star Wars bash at the Marriott Hotel, which is the biggest convention of its kind in the country.
"I really like Star Wars and I'm looking forward to Saturday, although I don't know what I have to do yet," he said.
His favourite character is Anakin Skywalker.
Cameron added: "Luke is a friend to me and I think all this has made me feel better."
The event takes place on Saturday and Sunday.
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