Parents Kelly and Rob Davies were distraught when they found out six-year-old Robbie had been refused NHS funding for the operation. Mum, Kelly, of Lower Stratton, describes their experience so far ROBBIE suffered a brain haemorrhage when he was born nine weeks prematurely and when he was 10 months old we found out he had cerebral palsy.

As a family we all found this hard to deal with because Robbie’s 11-year-old sister Emily also has cerebral palsy, so we couldn’t believe we have to go through it all again. As a family we all stick together.

Robbie attends Robert Le Kyng Primary School and is in top sets for everything. He is such a clever little lad all he wants is to go out to play with his brother and kick a football, or go to the park and play without other children treading on him.

He always says ‘mummy and daddy I get so upset because I cant walk.’ It breaks our hearts hearing this.

The SDR operation would mean everything for Robbie.

We have to carry Robbie around a lot to the car, or upstairs if he wants to play with his sister – which gives me a lot of back pain.

Robbie had physiotherapy over the Easter holidays and we were told if Robbie does not push himself up better on his feet, he is not going to walk at all. After hearing this, I walked out into the kitchen crying and told my husband, Rob, to take over .

My husband has always been in employment paying national insurance and tax we find it disgusting that Swindon NHS are stopping Robbie from having the SDR operation. Now we want something back, our son to walk.

Robbie is the most loving and caring boy, he just needs this operation for him to have a better life.

It would be amazing for us all as a family to watch all our four children run around together.

We were told by the surgeon in Bristol that Robbie could be walking in his walker six to 12 months after the operation, so please help us to give the chance for our child to have a normal life.